‘The neurologist said, ‘All girls your age have seizures. You’re fine, go live your life.’: EDS, epilepsy warrior shares struggles of navigating chronic illness as a black woman

“When the doctor came in, he spoke to me as if he didn’t believe I could possibly have my conditions. I told him my bones, particularly my patellas, needed support and I’d prefer if we didn’t check those, but he insisted. He pushed my kneecaps to the side and then said ‘oops’ as he easily dislocated one.”

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