“I’ll never forget being told to catheterize our 5-day-old baby. I didn’t even know that was possible. When they strapped her little arm, I nearly fainted.”
- Love What Matters
- Health
“I’ll never forget being told to catheterize our 5-day-old baby. I didn’t even know that was possible. When they strapped her little arm, I nearly fainted.”
“With a smile, my dad said, ‘You’re going to be tiny all your life.’ It didn’t usually bother me. I found acceptance and kindness at nearly every turn. And then I went viral.”
“Our genetics counselor suggested we institutionalize her. The speech therapist said right in front of my 8-year-old daughter, ‘She will likely never have a job. I don’t even think part-time work is in her future.’ Right then is when a fire got lit. We wanted her to have the fullest and most complete life she possibly could.”
“Going into Target is hard for me. Standing and talking too long is hard for me. I’ve almost fainted doing both things. It would be easy to hide from the world.”
“I’m 5’7″ and my husband is 6’3″.”
“I ran to the bathroom thirty times a day, losing blood each time. I broke down and sobbed. I felt defeated by this disease. I was only a shadow of myself.”
“There have been some really hard days of tantrums, yelling, and crying. ‘Are we crazy? What are we doing?’ We wouldn’t be here without our village.”
“The coach pulled me aside. ‘You have the skills, but I’m worried you’ll miss commands.’ I wasn’t about to let someone make assumptions based on my disability.”
“I found a mysterious name on my birth certificate. ‘Is this REAL? Like, am I actually doing this?’ I nervously sent him a message. My whole life was a lie.”
“Every month was a roller coaster. ‘I recommend cutting back on work.’ My jaw dropped. Any possibility of becoming a mother left the building.”

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