‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis

“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”

‘He asks: ‘How was your day today, what did you do?’ You think: Well, I was woken at 7 a.m. while I was in blissful deep sleep by a loud bloodcurdling scream because the baby poo exploded.’

“To say there was crap everywhere was an understatement. The toddler was also angry because he could hear commotion and he wasn’t involved, so he started screaming too. Finally, ready to leave, woohoo! Victory! Except, I’m still in pajamas and I’m pretty sure I have poo on my top…”

‘He waited until we were driving home. Cancer. Stage 4. After, I call my dad and tell him ‘me too.’ My stoic dad cries, not for himself, but for me.’: Woman copes with the effects of cancer

“Looking back, there was ‘The Before,’ and then there was ‘The After.’ I am a stranger to that woman now. Loss happened to other people. Cancer happened to them. Until one day they are gone, and all that is left is the heartbreaking absence of their presence.”

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