‘You can’t have these symptoms because they do not match your appearance. You must imagine them.’: Woman with Ehlers-Danlos syndrome shares journey to diagnosis, reclaiming her life

“I was in endless survival mode, in bed for months, and none of my doctors believed me. Every well-crafted piece that compiled my life broke apart. I realized that no matter how hard I tried, there was no way back into my old life. I needed to find a new purpose, a new definition of who I was and what I wanted in life. And that’s when something shifted inside me.”

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