‘There are only 150 known cases.’ What?! There was no cure, no treatment. ‘Leo will never walk, talk, or live a normal life.’: Mom raises awareness for son’s rare Infantile Neuroaxonal Dystrophy

“The first thing I asked was his life expectancy. ‘5-10 years.’ The tears did not stop pouring. How could it be true? Why should his life be cut short? Once we got out of the initial haze of disbelief, we immediately knew we had to take action.”

‘We have a 3-week-old girl.’ I had tears in my eyes. ‘We have a daughter, Kristen. We have a daughter!’: Couple adopt daughter on 5-year anniversary of miscarried angel baby

“Our adoption lawyer informed us our final hearing would be August 26, 2021. At the time, I didn’t realize the significance of that date, until Facebook reminded me in my memories of what happened 5 years earlier: a plea for prayer for Elijah, our Elijah. I stopped, realizing how God had set into motion something beyond what I had even imagined.”

‘Every year, every milestone, is wrapped up in this image of an almost-man, walking out my front door.’: Mom to all-grown-up son urges ‘don’t blink, take in every moment’

“It’s just a stepping stone. A step away from the past. The past when I held him in my arms. A step closer to the future. The future when I have to let go. I can still see my little boy with his Spiderman backpack on his first day of kindergarten. I still see my baby on the first day he was placed in my trembling arms.”

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