‘How can I be an advocate one day and a sobbing mess the next? The ups and downs were exhausting.’: Mom of boys with rare degenerative disease says ‘it’s OK to not be OK all the time’

“It’s only through the hard days that I get stronger. It’s only after those long, painful sobs that my tears turn to courage. It’s only after I wallow in the valley of sorrow that I’m able to find the strength to climb back up that mountain and choose joy again.”

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