‘There are only 150 known cases.’ What?! There was no cure, no treatment. ‘Leo will never walk, talk, or live a normal life.’: Mom raises awareness for son’s rare Infantile Neuroaxonal Dystrophy

“The first thing I asked was his life expectancy. ‘5-10 years.’ The tears did not stop pouring. How could it be true? Why should his life be cut short? Once we got out of the initial haze of disbelief, we immediately knew we had to take action.”

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