“The other day one of my son’s friends, who has been spending a lot of time at our house, called him ‘Rich Boy.’ At the time, my son really didn’t have much to say about it, but at bedtime something was on his mind that he needed help sorting out. ‘Mommy, why was Charlie calling me Rich Boy?’ I felt tears begin to sting my eyes and clenched my toes to will them back into place.”
“As soon as I woke, I immediately went looking for my husband. I don’t know how, but I knew something was terribly wrong. I searched room-by-room and when I got to the office, I saw it. A note on the desk. I remember screaming in my backyard, crying to the 911 operator. ‘Can you tell me about his erratic behavior?’ I watched the blood on my hands go down the sink as I tried my best to answer questions. Guilt washed over me.”
“Nothing readies you for when your 8 year old has completely lost control; for when his behavior disorders become so powerful his brain is no longer acting as a part of his body but has now waged war on it. But today–thank God, today–I kept it together.”
“We jumped in the car to run some evening errands. ‘Stay there. We are sending help,’ she said urgently. The thing that defined our relationship was snack wrappers. It’s embarrassing to admit how much of our daily interaction revolved around me telling him to, ‘pick them up!’ It is always the unimportant decisions that change lives.”
“I promise no app, no social media platform, or amount of internet followers will ever scratch the surface of your worth to your family and your true friends.”
“Sometimes my teenager’s 6ft-tall stature and deep voice and shadow of a mustache and size 13 shoes trick me into thinking he might not need me so much anymore. Everything seems to be changing, but there is one thing that will never change…I will ALWAYS be his mom.”
Since her soldier husband wasn’t expected to return home from Kuwait for another few weeks, Cydney began typing up a text message for him with an update about their newborn twins. Meanwhile, she had no idea someone very special had just walked into the hospital room.
“Hold your child a little tighter tonight.”
“I was happily drinking a margarita. They all looked at me like I was crazy. I replayed every second leading up to her death. I realized there was no amount of science that could save her, but why her?”
“To EVERY marker of Down Syndrome the world calls broken, we filled in with gold.”
