“The doctor tried to comfort me. ‘I see it very often.’ Then she looked at him. What we found was worse than we could ever imagine.”
“The doctor tried to comfort me. ‘I see it very often.’ Then she looked at him. What we found was worse than we could ever imagine.”
“She ran away for the first time just before I turned 9. She drove straight to the airport and headed across the country. ‘I promise I’ll make it home for your birthday.’ She wasn’t there.”
“I looked down at my sweet smiling two-year-old, eyes following a bird in flight above. ‘But I’m going to miss this,’ I answered in a soft, quiet voice. Because gosh, I’m going to miss this.”
“In fourth grade, I remember looking over at the girl sitting next to me. ‘Why don’t I look like her?’ Her stomach was flat, not round like mine.”
“If you kissed Alexis on the forehead and licked your lips, it would taste like the ocean. All the blood drained from my face.“
“I had NO idea how I’d do it or where I’d get the money. I just knew I HAD to.”
“My body has more implants and bionic body parts/organs than human parts. I’m not the mother I envisioned myself being, but I get out of bed anyway. For my kids, for my husband, and for myself.”
“I’d drive my car to the river and sit there, thinking about how long it would take to break through the ice. I just wanted to leave this world. I never shared this with anyone.”
“I had severe pain on my right side that wouldn’t go away. I was taken to the ICU, where the fight of my life began. I was hospitalized for over 40 days while they tried to save me.”
“I’ll never forget having my whole life ahead of me one day and the next, being told, ‘There’s no cure. Your life expectancy is 5-10 years.’ I was scared and alone.”