‘I probably won’t outlive my sister or may not be able to see my children grow up. ‘Do you feel like a burden?’—Yes, I do’: Woman with Cystic Fibrosis details journey, ‘If you search for the silver living, you’ll always find it’

“I had no energy to move, let alone scream. My parents had nothing to be concerned about. All was a mystery. I hid behind the paper and the little book in my wardrobe no one knew existed. I was fine about everything and I sort of still am, but I don’t want to die yet.”

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

‘My friends joked, ‘What if you’re actually pregnant?’ We laughed. At 19, my body was creating a life without my knowledge.’: Young woman details unexpected pregnancy, loss

“I’d been walking around with a big fat smile on my face, telling the world I was going to be the greatest mother for this little girl. ‘You made the right decision, it was meant to be.’ ‘You’re strong for going through this pregnancy.’ Then I felt a pop, and there I was, shaking my stomach trying to wake up my daughter.”