“When I wake up every morning, I don’t look in the mirror and see dwarfism. But I know once I step outside the door, somebody will remind me. A common question is, ‘What do you want to be called? Dwarf, little person, LP, midget?’ I would like to be called Amy, because that’s my name. At the end of the day, I want people to remember who I am, not what I look like.”
“My stepdaughter has only known her parents being apart. They split when she was 1. I assumed she didn’t have any issues about living in two homes. She brought up ‘Cinderella’ and how the stepmom was mean. Her response made me tear up. ‘I think we are really special. It’s different with us.’ I know it’s not easy for all blended families. The crucial piece is to have a cordial relationship with her mother.”
“We celebrated birthdays for two of my sons. Wanting my mom here to celebrate and spoil her grandsons was overwhelming. I even made a last minute run to the grocery store, just to let the tears pour. Then I realized she was there at the party for her grandsons.”
When Jonathan Scott Hernandez was 12 years old, his life took a very unexpected turn. His parents got separated and he went to live with his father. This was the life event that would cause the then-sixth-grader to lose touch with his mother, Linda, and younger sister, Jericha, after they moved away to Florida. Today, …
“I remember my grandfather always calling my name, looking for me. While most kids were dreaming of graduating high school, I was piecing together horrific memories. I remembered the smell of the burnt orange carpet when I’d hide under the bed. I remembered the knick-knacks on the dresser I focused on to escape what was happening. Many people ask me, ‘Why in the world do you continue to do foster care when your own biological kids have left the nest?’ The answer is simple: I’m meant to love people through their pain.”
Two of the babies, Macey and Mackenzie, were conjoined at the pelvis and shared a third leg. And since their intestines were entwined, separation surgery would be incredibly risky.
“We get told our family is a sin and our kids are having medical problems because we shouldn’t be together, and we should each be with a man.”
“Hattie had been born with a significant deletion of her first chromosome. We had no idea what this all meant. Hattie was one in a billion. We received a plethora of mail. ‘Dear parent or guardian of a child with special needs.’ Special needs? Hattie doesn’t have special needs, does she? As far as we knew, Hattie seemed completely normal to us! We have learned to avoid the CAN’Ts and focus on all the CANs.”
“’Maybe if I drank bleach,’ I think. I feel so dirty, tired and stiff. ‘Maybe if I turned inside-out and scrubbed my veins out with soap.’ Surely the disease would be eradicated. I’m supposed to find out today. I tap my foot. ‘Remember to breathe, you have to breathe, just breathe.’ Dr. Box settles into his rolling chair. ‘So she’ll always be sick?’ ‘Yes, but we caught it early.’ Yesterday, I dropped my hairbrush. I couldn’t finish. My hair is still knotted in the back. Last week, I passed out briefly, stepping out of the shower. And this was an improvement.”
“Emily was only 2 pounds. She was so small my husband’s wedding band fit around her tiny wrist. She was crying, but I could not hear her. It didn’t seem real. Quickly, I was told by nurses, ‘You cannot touch her.’ I felt helpless. With each day, it became more and more evident my marriage was not going to survive this horrific ordeal.”
