Mom shares photos from son's journey with microcephaly

The doctor said, ‘No one ever told you about his head circumference? It’s really small.’ My heart sank.’: Mom of baby with microcephaly fights for diagnosis, ‘I wouldn’t trade him for the world’

“I laid him down and I noticed his head was turned all the way to his right and his arms were bent up. He looked almost frozen. I told my husband, ‘Ben just did something weird.’ We had seen many pediatricians and they all told me he was healthy. But I knew something wasn’t right.”

On the left, baby with dwarfism stares into the camera. On the right, same girl sleeps in the hospital.

‘Your baby girl isn’t growing properly.’ My daughter doesn’t need changing. This world does.’: Mom to daughter with dwarfism advocates for inclusion

“Without much explanation, the doctor headed back to her office to look over the measurements, leaving me to delve into Google. Without enough info, full of fear and armed with nothing but shock and anxiety, I stumbled upon scary statistics, a lack of information and words that seemed jumbled on the page.”

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