“While it’s everything we’ve wanted for so long, it does have its challenges.”
- Love What Matters
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- Special Needs
“While it’s everything we’ve wanted for so long, it does have its challenges.”
“I laid him down and I noticed his head was turned all the way to his right and his arms were bent up. He looked almost frozen. I told my husband, ‘Ben just did something weird.’ We had seen many pediatricians and they all told me he was healthy. But I knew something wasn’t right.”
“Without much explanation, the doctor headed back to her office to look over the measurements, leaving me to delve into Google. Without enough info, full of fear and armed with nothing but shock and anxiety, I stumbled upon scary statistics, a lack of information and words that seemed jumbled on the page.”
“I had my 20-week anatomy scan. This is always my favorite appointment, where the sonographer details every portion of the growing baby, and I go home to put a perfect sonogram photo on the fridge. This appointment was different.”
“Not only did Rebecca have Down Syndrome, but she also had 2 holes in her heart and a fissure.”
“I know it might feel like most of my time, thoughts, and efforts are spent on your brother, but please know that I see you.”
“I no longer cried countless tears over calories. I no longer looked into my child’s terrified eyes when the bottle would come near him. I no longer frantically called my mom asking if 2 ounces was all he really consumed that day.”
“I carried her everywhere, held her at every meal, slept with her on top of me, and showered with her in my arms. She wouldn’t take no for an answer. Just as if I carried her in my womb, she was learning my voice, reaching for my touch, and studying every detail of my face.”
“I called everyone crying and scared. Flying autistic is not easy, especially if I fly alone.”
“I’m not saying don’t do it. I’m not saying to give up. I’m not saying don’t try. I’m saying it’s okay. It’s okay if you do it all and still fall short of the goal. I’m saying it’s not your fault.”