“I called my husband: ‘You have to leave work.’ I couldn’t find the right words, so I just showed him the ultrasound pictures. Three perfectly healthy babies. I felt like I was in a dream. We both sat there for what seemed like the whole afternoon. How would we manage this with his new diagnosis and 2 active boys who were already taking up all of our love and energy?”
“A lot of people think it’s just a ‘tube’ of sorts transporting nutrients to their baby. But…it’s so much more intricately designed than that!”
“In the coldest bedside manner alive, the doctor said, ‘There is no cure. If she lives, she’ll stop mentally developing at 2 months old. Here’s some paperwork. Any questions?’ I stared at him, my body slowly over heating. I told my husband to get me out of there. I looked up at the sky and thought, ‘Well, here we go.’”
“I started to notice she wasn’t ‘just like her sister’ around 9 months old. She still didn’t have her first teeth, and was barely babbling any words, let alone noises.”
“I heard a frantic screaming from upstairs. My daughter had gone into the bathroom to use the toilet. This provoked the unbridled anger of her brother. Infuriated, he stood and peed on her in retribution.”
“The very cord that was meant to sustain her ended her life so abruptly.”
“I open the fridge, over and over, to prove to children there is always food. I attend IEP meetings and I advocate for kids. But you know what else I do?”
“As the doctor was trying to tell me it was ‘just a virus,’ I looked at her and said, ‘But he can’t move.’ She suddenly stopped and looked at him a little closer. After prompting him, he still did not move. I saw the panic rush across her face. My entire world collapsed in front of me.”
“At only 17 years old, while still a senior in high school, I vividly remember the intense fear I felt when I looked at that pregnancy test. What would become of me? I had always been the good girl – the one that got good grades and followed the rules.”
“I was pushed around, thrown, kicked until I passed out. I looked in the mirror and felt ashamed of how I looked. I didn’t tell anyone what was going on. Until one day I fell to the floor at my mom’s house and cried like I never had and talked about driving off a bridge. I can’t imagine what it must’ve been like for my mom to see her 6’8″ son breaking down in front of her, not knowing how to help.”
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