‘I awoke to my husband’s screams. ‘Wake up, Kara isn’t breathing!’ In the blink of an eye, she was gone.’: Mom loses daughter to SIDS, starts foundation in her honor

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“I once stood at what looked like the gates of heaven— bathed in golden light. The Angels and I were having some sort of serious discussion. It was all very peaceful while I was there. Coming back was a different story. Thrust from that place, I awoke to my husband’s screams. ‘Lily, wake up, Kara isn’t breathing!’ The terror still grips me as I type. The nightmare had begun. Our infant daughter had been ushered through heaven’s door and I was locked out.

At 2 months old, she passed to the other side and I was shot back into the land of the living. Why was she taken from me and why did I have that dream the night she died? I would never again feel those soft baby hairs, the heat of her being alive. I would never see her smile again. She had died in the dark of night of Sudden Infant Death Syndrome. Her name was Kara Meyer Dulan and I was knocked past my knees—flooded with incomprehensible grief.

Courtesy of Lily Dulan

Before our precious daughter came to the world, my husband and I had been together for well over 10 years. We didn’t want children right away. We were still young and wanted to experience the nightlife and sparkle of LA. But as they say, not all that glitters is gold. Unfortunately, when we decided it was time to have children, it wasn’t as easy as we thought. First, I needed to clean up my unhealthy lifestyle and quit drinking so I could commit to the rigors of fertility treatments. Then, time-consuming and expensive doctors’ visits became a regular part of my routine. With the help of 12-step groups—sobriety and having a child became my only priority. All else went on hold.

Courtesy of Lily Dulan

We spent years trying to conceive and when she was here the joy was felt by the community who had helped us hold the vision for a new life and new possibilities. We held hands at her welcoming ceremony, danced, and celebrated her arrival with family and friends. And then in the blink of an eye, she was gone. What had I done wrong? Was God angry with me?

As an MFT Psychotherapist and Yoga/ Meditation Teacher, I had heard countless tragic stories that happened to other people—and now the angel of death had visited our door. The pain was so severe I thought I’d die—and then that heart-piercing stab gave way to what I can only describe as a soul-sucking numbness. Would I waste away? Somehow, I reached out in the darkness and talked to a trusted friend and mentor, Reverend Michael Beckwith. He told me I had to decide whether to grow or shrink from the tragedy and in that moment, I chose to grow. I didn’t know it then, but in that dark place, I was planting the seeds for my own transformation.

Courtesy of Lily Dulan

It may seem like an oxymoron but the grief over losing my daughter at such a young age has brought me great healing. This is because I am sober, relatively sane, and committed to the healing path through being present for my suffering.

I want to say here the idea that grief brings with it spiritual transformation is not popular in some circles. A well-known author has even called the idea that grief brings this opportunity ‘hogwash.’ I beg to differ. My suffering helped me grow in ways I had never imagined. I am not saying grief, trauma, and suffering don’t suck. They most definitely do. I didn’t sign up for such anguish, but I learned over time I have a choice regarding how I choose to move through it all. This means I respect the reality I feel the darkness closing in and in spite of it, I take some sort of positive action. This can be as simple as doing the dishes and brushing my teeth each day. These little acts matter and it’s important I name them as self-care. They seem small but they connect me to life.

Alexandra Cooper Photography

When I was in deep grief, I needed to move towards making a meaningful life and ‘act as if’ the universe was a good and beautiful place even when I couldn’t see it. Through practicing little acts of self-love and care, I eventually became strong enough to help those who suffer. My spiritual practice now is to be of service in Kara’s loving memory.

But as they say on airplanes, it’s important to remember I need to first put the oxygen mask on myself before I can help anyone else. To do this, I used the tools I had learned as an MFT Psychotherapist and Yoga Teacher and practiced self-care through wellness practices like meditation and walking or hiking. I also stayed committed to sobriety and my weekly women’s group. I have found seeking support and embracing wellness practices help me through.

Alexandra Cooper Photography

Through this commitment to life, I would eventually start the Kara Love Project, a foundation that serves marginalized children, families, seniors, and people both locally and globally in her honor. I started by hosting a camp for kids in our backyard. But my vision came to life after holding a fundraiser for and actually visiting the Unatti Group Home for Girls in Bhaktapur Nepal. It was halfway across the world my healing truly began. I soon learned many of the girls in the home had suffered horrific abuse and poverty. Yet somehow, they had ‘made it through’ with grace, gratitude, and dignity. Connecting to life again through getting to know the girls and being of service helped me honor the light that was our precious daughter’s life and made space for me to tell my story of healing.

Courtesy of Lily Dulan

When I returned from Nepal in 2017, I wrote my first book, Giving Grief Meaning. It tells my story and how I came to find wisdom and beauty within the letters of Kara’s name. I call my discovery the name work. Here’s how it looks.:

K-A-R-A

K—is for kindness. Let me first be kind to myself so I have the ability to be kind to others and then my environment.

A— is for alignment. Let’s act as if the universe is good even when I can’t see it.

R— is for regeneration. I commit to practices that help me feel a sense of spaciousness and calm. This can happen by taking a walk or practicing yoga. Whatever is right for me.

A—I take what I have learned out into the world of action.

Alexandra Cooper Photography

Besides supporting organizations that make positive change, my life’s vocation is now about raising the two beautiful children we adopted at birth and telling my story to help others. I wouldn’t have the life I have today if I hadn’t embraced the idea I can heal and transform through grief. 100% of the proceeds from my book support our Kara Love Project, the foundation we created in loving memory of our precious girl. I look forward to connecting on the path and hope those who hurt find strength and healing through my method and story.”

Alexandra Cooper Photography

This story was submitted to Love What Matters by Lily Dulan. You can follow their journey on Instagram, Facebook, and their website. Do you have a similar experience? We’d like to hear your important journey. Submit your own story here. Be sure to subscribe to our free email newsletter for our best stories, and YouTube for our best videos.

Read more powerful stories of parents working through child loss:

‘I went into my son’s room to wake him. I could sense something wasn’t right. I remember the pallor of his face as I turned him over. Grey. Porcelain.’

‘When we lost her, we lost our way completely. The day she died, my heart didn’t break – it disintegrated.’: Baby dies of SIDS at daycare; family heals by choosing to ‘make the world a kinder, more loving place in her name’

‘My son was 4 days away from 8 months old. Never one health concern, happy and brighter than the sun itself. I was in total bliss. Then, just like that, it was gone.’

‘The cold room smelt like bleach. It felt so wrong. ‘She’ll be returned to you in a carboard box.’ We dropped to our knees.’: Mom loses 10-month-old daughter to SIDS

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